Skip to main

Impact case study database

The impact case study database allows you to browse and search for impact case studies submitted to the REF 2021. Use the search and filters below to find the impact case studies you are looking for.

Search and filter

Filter by

  • The University of Bath
   None selected
  • 4 - Psychology, Psychiatry and Neuroscience
   None selected
   None selected
   None selected
   None selected
   None selected
   None selected
Waiting for server
Download currently selected sections for currently selected case studies (spreadsheet) (generating)
Download currently selected case study PDFs (zip) (generating)
Download tags for the currently selected case studies (spreadsheet) (generating)
Currently displaying text from case study section
Showing impact case studies 1 to 5 of 5
Submitting institution
The University of Bath
Unit of assessment
4 - Psychology, Psychiatry and Neuroscience
Summary impact type
Health
Is this case study continued from a case study submitted in 2014?
No

1. Summary of the impact

Children with pain are able to live full lives because of the University of Bath’s Centre for Pain Research (BCPR) which has:

  • Led the uptake of evidence based novel treatments in the UK and internationally;

  • Improved pain assessment through the adoption of Bath Adolescent Pain Questionnaires (BAPQ) in the UK, USA, Australia and New Zealand between August 2013 and December 2020 to enable optimal diagnosis and treatment;

  • Influenced national and international policy on treating children’s pain, informed guidance produced by the Scottish Government in 2018, and the World Health Organisation (WHO) in 2020.

2. Underpinning research

Chronic pain is a global public health problem, with 20% of adolescents reporting a significant chronic episode of pain, distress and disability, which for 8% continue to suffer into adulthood and causes personal and economic hardship across the lifetime. Research in the Bath Centre for Pain Research (BCPR) has demonstrated that the number of viable pharmacological treatment options for children and adolescent pain is small and there is no significant development [3.6]. The original research, conducted by BCPR was amongst the first to focus on adolescents in pain and their families, and within an age-appropriate developmental context. Research at Bath has identified the psychosocial mechanisms most relevant to paediatric pain populations [3.1-3.3] and determined which approaches work best for this patient group [3.4-3.6]. BCPR have produced new measurement tools for targeted assessment and classification of chronic pain, and developed novel intensive Cognitive Behavioural Treatments for pain management for international use. Specifically:

Psychosocial mechanisms: The Centre’s research has focused on improving understanding of the cognitive-affective and social mechanisms of pain in children and adolescents. BCPR have identified fear-related vigilance to pain and avoidance of pain cues as drivers of chronic pain behaviour [3.1-3.3]. Therapeutic targets should therefore be on decreasing anxiety and increasing flexibility in how pain is attended and responded to. BCPR have found that individual (sex) differences exist in how these mechanisms affect pain [3.1], and shown they operate within an interpersonal (family) context [3.2-3.3]. This mechanism discovery work provides novel targets for translation in both psychological and pharmacological interventions, with a focus on altering the rigidity of pain avoidant behaviours.

New methods of assessment [3.2, 3.3]. Although pain requires interdisciplinary treatment, prior to the Centre’s research there were no clinical measures reflecting the multidimensional nature of pain for children. BCPR used the knowledge of psychosocial mechanisms (e.g., fear, family context) to develop the first multi-dimensional measure of the impact of chronic pain on adolescents, the Bath Adolescent Pain Questionnaire (BAPQ) [3.2]. The BCPR also developed an associated measure of the impact of a child’s pain on the parent, the Bath Adolescent Pain – Parent Impact Questionnaire (BAP-PIQ) [3.3].

Research on pain treatment. The identification of psychosocial mechanisms and assessment methods was used to develop new treatment approaches, which BCPR have evaluated [3.4]. In addition, BCPR produced and maintain the evidence base for all treatments for paediatric pain, pharmacological and non-pharmacological [3.5-3.6]. For example, the evidence review of psychological interventions for children and adolescents with pain is presented in reference [3.5]. Additionally, the BCPR established the Chronic Pain in Children research programme, which produced 10 Cochrane Systematic Reviews, the leading journal and database for systematic reviews in health care, and an overview review on the efficacy of pharmacological interventions [3.6]. This overview highlighted the lack of available evidence across all drugs in relieving pain in children.

3. References to the research

Mechanisms

[3.1] Keogh, E & Eccleston, C 2006, 'Sex differences in adolescent chronic pain and pain-related coping', Pain, vol. 123, no. 3, pp. 275-284. https://doi.org/10.1016/j.pain.2006.03.004

Assessment

[3.2] Eccleston, C, Jordan, A, McCracken, LM, Sleed, M, Connell, H & Clinch, J 2005, 'The Bath Adolescent Pain Questionnaire (BAPQ): development and preliminary psychometric evaluation of an instrument to assess the impact of chronic pain on adolescents', Pain, vol. 118, no. 1, pp. 263-270. https://doi.org/10.1016/j.pain.2005.08.025

[3.3] Jordan, A, Eccleston, C, McCraken, LL, Connell, H & Clinch, J 2008, 'The Bath Adolescent Pain – Parental Impact Questionnaire (BAP-PIQ): development and preliminary psychometric evaluation of an instrument to assess the impact of parenting an adolescent with chronic pain', Pain, vol. 137, no. 3, pp. 478-487. https://doi.org/10.1016/j.pain.2007.10.007

Treatment

[3.4] Eccleston, C, Malleson, PN, Clinch, J, Connell, H & Sourbut, C 2003, 'Chronic pain in adolescents: evaluation of a programme of interdisciplinary cognitive behaviour therapy', Archives of Disease in Childhood, vol. 88, no. 10, pp. 881-885. https://doi.org/10.1136/adc.88.10.881

Evidence for treatment

[3.5] Fisher, E, Law, E, Dudeney, J, Palermo, TM, Stewart, G & Eccleston, C 2014, 'Psychological therapies for the management of chronic and recurrent pain in children and adolescents', Cochrane Database of Systematic Reviews, vol. 2014, no. 5, CD003968. https://doi.org/10.1002/14651858.CD003968.pub4

[3.6] Eccleston, C, Fisher, E, Cooper, TE, Grégoire, MC, Heathcote, LC, Krane, E, Lord, SM, Sethna, NF, Anderson, AK, Anderson, B, Clinch, J, Gray, AL, Gold, JI, Howard, RF, Ljungman, G, Moore, RA, Schechter, N, Wiffen, PJ, Wilkinson, NMR, Williams, DG, Wood, C, van Tilburg, MAL & Zernikow, B 2019, 'Pharmacological interventions for chronic pain in children: an overview of systematic reviews', Pain, vol. 160, no. 8, pp. 1698-1707. https://doi.org/10.1097/j.pain.0000000000001609

Funding details

PPP Healthcare Medical Trust (UK) GBP102,166. Duration 8/2001 to 11/2004. Development of a measure of the impact of chronic pain on adolescents. Principal Investigator C. Eccleston. Collaborators: L. McCracken, H. Connell, J. Clinch, C. Sourbut, G. Taylor.

BUPA Foundation. GBP130,000. Duration 8/2003 to 8/2006. Developing a multi-dimensional inventory to measure the impact of adolescent chronic pain on parents. Principal Investigator: C. Eccleston. Collaborators: L. McCracken, H. Connell, J. Clinch, C. Sourbut, G. Taylor.

NIHR Cochrane Programe Grant on Chronic Pain, Cancer Pain, and Pain in Children. GBP420,000. Duration 08/2014 to 07/2017. Principal Investigator: C Eccleston. Collaborators: A. Moore, P. Wiffen, C. Stannard.

4. Details of the impact

Changed clinician practice in pain treatment nationally and internationally leading to improved children’s quality of life

Between August 2013 and December 2020 BCPR research on psychological mechanisms [3.1-3.3] has been applied to change how clinicians manage children’s pain [5.1-5.5], by shifting the focus to cognitive-emotion processes and incorporating measurement into care pathways. As noted by the Lead of the Paediatric Pain Research Group and the Consultant Lead of Paediatric Pain Service at Great Ormond Street Hospital [5.1] the Centre’s research has “ ensured that psychological constructs and mechanisms such as pain catastrophising, approach-avoidance and attention bias, are [understood by] a range of practitioners involved in paediatric pain management” and “ led to major improvements in clinical care” [5.1]. Rather than reduce painful sensations, clinicians now target fear-cognitions in treatment. This was acknowledged by the Managing Director of Paediatric Pain at Stanford University [5.2] who said that “ the recognition and codification of Fear of Pain by Bath [has led] to policy changes in formally incorporating measurement into the standard clinical pathways of care of several paediatric pain clinics” including Los Angeles Children’s Hospital [5.2]. In turn, this has “ improved the lives and health of children in many clinical practices…and continues to inform clinicians regarding the use of…[opioids] in infants and children” [5.2].

Provided new models of healthcare management of childhood pain

Since August 2013 BCPR’s treatment approach for childhood pain [3.4] has led to the development of new services and changes in care models [5.2-5.3]. The Head of Service for Paediatric and Adolescent Chronic Pain at Evelina Hospital, London [5.3] said the BCPR have “ influenced the standards of care of many services, including mine. The assessment or outcome tools have also helped commissioners and colleagues across our networks understand the demands of assessment and management”. The “networks” refer to clinical services that the Head of Service set up including the service in London established in 2014 (population of 8,000,000), which received 200-300 referrals per annum. He used the Centre’s research “ as a reference for business cases and persuading management teams and commissioners of the rationale for our model of care” [5.3].

Changed how pain treatments are appraised leading to increased effectiveness of treatments

Since August 2013, BCPR assessment tools [3.2, 3.3] have continued to be used to help improve the lives of children in pain and their families in the UK, USA, Australia and New Zealand [5.2-5.4]. Clinical healthcare practitioners used them to assess the effectiveness of their treatment programmes for children’s pain management, leading to better treatment regimes and, as a result, improvements in children’s quality of life [5.2-5.3]. One of the best examples can be found in the adoption of BCPR measures within the electronic Persistent Pain Outcomes Collaboration (ePPOC) system. ePPOC aims to improve the quality of care and outcomes for people with chronic pain in Australia and New Zealand. Over 90 adult and paediatric pain management services currently participate in ePPOC. Since 2014 BCPR scales are one of the standard measurement tools used in all hospital-based paediatric pain centres. The Director of ePPOC [5.4] describes the Centre’s work as “ critical” to ePPOC, using the BAPQ and BAP-PIQ to “ produce information on the effectiveness of pain management interventions; develop an Australasian benchmarking system to improve pain management outcomes; [and] provide comparative data to pain management services using the benchmarks developed”. In 2020 the BCPR assessment tools [3.2, 3.3] have been independently verified as having “ utility to audit pain clinic activity and potentially a use in demonstrating beneficial outcomes to commissioners” [5.6, p. 7].

Influenced policy guidance on treating children’s pain

The BCPR research on treatment efficacy [3.5-3.6] has informed clinical guidance and policy. Nationally, this includes informing recommendations in the Royal College of Anaesthetists Faculty of Pain Medicine’s Core Standards for Pain Management Services in the UK (2015) [5.7, p. 117-118] and in the Scottish Government’s National Clinical Guidelines on the Management of Chronic Pain in Children and Young People (2018) [5.8, p. 16-17, 32, 67]. Internationally, the Director of Pain Medicine at the University of Washington’s School of Medicine [5.5] used the Centre’s research to inform guidance given to US agencies (Food and Drugs Administration), expert testimony to regulators, and contributed to practice guidelines. He said “ A central issue is to provide evidence for when opioids may be useful (or not) in treating recurrent or chronic pain in younger patients. Here again, the aforementioned Cochrane reviews have proven invaluable in these deliberations and the policies and guidelines that resulted”. In 2020 the WHO published global guidance recommendations on paediatric pain treatment [5.9, p. 32], which drew on BCPR research [3.6]. BCPR also acted as the evidence support team for this document.

5. Sources to corroborate the impact

Individual Testimonials

[5.1] Testimonial: Lead of Paediatric Pain Research Group and Consultant Lead of Paediatric Pain Service, Great Ormond Street Hospital NHS Foundation Trust, London, UK, 24 August 2020.

[5.2] Testimonial: Director, Pediatric pain, Departments of Anesthesiology, Perioperative and Pain Medicine; Department of Pediatrics, Stanford University School of Medicine, USA, 7 September 2020.

[5.3] Testimonial: Head of Service, Paediatric and Adolescent Chronic Pain, Evelina Hospital, London, UK, 25 August 2020.

[5.4] Testimonial: Director, electronic Persistent Pain Outcomes Collaboration (ePPOC). Australia and New Zealand, 2 September 2020.

[5.5] Testimonial: Director of Pain Medicine, University of Washington School of Medicine, Seattle Children’s Hospital, USA, 28 August 2020.

Independent practice-based evaluation of BAPQ

[5.6] Goddard JM, Robinson J, Hiscock R. Routine use of the Bath Adolescent Pain Questionnaire in a paediatric pain clinic. British Journal of Pain (in press). Published online 6 June 2020. https://doi.org/10.1177/2049463720927067

Policy/Guidance

[5.7] The Faculty of Pain Medicine. Core Standards for Pain Management Services in the UK. London: Royal College of Anaesthetists; Published October 2015.

[5.8] Short Life Working Group for Paediatric Pain. Management of Chronic Pain in Children and Young People: A National Clinical Guideline. Edinburgh: Scottish Government; Published 23 March 2018. Available from: https://www.gov.scot/Resource/0053/00533194.pdf

[5.9] World Health Organisation (WHO) policy guidelines. World Health Organisation Guideline for the management of chronic pain in children. Published online 22 December 2020. https://www.who.int/publications/i/item/9789240017870

Submitting institution
The University of Bath
Unit of assessment
4 - Psychology, Psychiatry and Neuroscience
Summary impact type
Health
Is this case study continued from a case study submitted in 2014?
No

1. Summary of the impact

Tinnitus is a common and debilitating health condition, requiring clinical intervention in 3% of adults. Dr Marks’ research established the effectiveness of a new, innovative Mindfulness Based Cognitive Therapy for Tinnitus (MBCT-t). The research demonstrated clinically significant reductions in tinnitus severity in 62% of treated patients, sustained at six months. Improvements were shown to continue for years, and treatment is associated with decreased patient re-referral rates (just 1%, far lower than standard care), indicating real economic savings. MBCT-t is acceptable to patients, who have described it as ‘life changing’. Prior to the research, few UK tinnitus patients had ever accessed mindfulness. Since dissemination, the research has changed clinical practice and at least 5,000 UK tinnitus patients have now been treated with mindfulness. By providing critical evidence for the efficacy of MBCT-t, the underpinning research directly influenced health policy, and for the first time both the European (2019) and NICE (2020) Tinnitus Guidelines recommend MBCT-t be considered as a treatment for tinnitus.

2. Underpinning research

The British Tinnitus Association (BTA) states that 6,000,000 people in the UK report tinnitus, with a substantial societal cost of GBP2,700,000,000 per annum (GBP750,000,000 in healthcare costs, plus significant family costs and productivity loss). Considerable emotional and social impacts are reported by 20% of tinnitus sufferers (depression, anxiety, insomnia, and impaired cognition, functioning and quality of life) [4]. It is estimated that 3% of all adults may require clinical intervention for tinnitus [Ai]. No medical or surgical ‘cure’ to ‘silence’ tinnitus exists [Ai]. For decades, the only available treatment was sound therapy, advice to resist tinnitus (e.g. partial masking), relaxation and supportive counselling, despite there being insufficient evidence for clinical or cost effectiveness for such approaches [Ai]. Psychological treatments have far better outcomes [Ai], but these are rarely offered and often inaccessible. Research developing and demonstrating the benefits of such treatments therefore has a significant impact on the huge number of people who are suffering with this challenging condition.

Dr Marks’ research at the University of Bath, in collaboration with University College London and Royal National Throat, Nose and Ear hospital, has significantly improved the evidence base for psychological treatments for tinnitus. Findings demonstrated that Mindfulness Based Cognitive Therapy for tinnitus (MBCT-t) meaningfully changes how people think about and relate to tinnitus, reducing tinnitus severity and improving quality of life [1,4]. This empirical evidence challenged the fundamental principles underlying traditional treatments: Rather than resisting tinnitus or trying to relax (as standard advice would encourage) mindfulness teaches patients to relate to tinnitus differently. By replacing their struggle against tinnitus with a new, more adaptive relationship to it, patient recovery and quality of life are enhanced [1-5]. Advice to use mindfulness for tinnitus has thus brought a new perspective to tinnitus care, with significant benefits for patients.

In 2020 the underpinning research was cited as the most reliable evidence for mindfulness in tinnitus [Aii], based on a gold-standard, randomised controlled trial published in 2017 comparing MBCT-t to active treatment (relaxation training) [1], robust qualitative studies disseminated in 2019 and 2020 [3,4] and evaluations of a large, complex sample in an NHS clinic published in 2018 and 2020 [2,5]. The standardised protocol is easily replicated, and the qualitative studies offer clear clinical advice.

In 2017 it was shown that MBCT-t led to reliable and clinically significant reductions in standardized measures of tinnitus severity and intensity in 62% of patients, sustained for six months. Treatment showed a moderate effect size (standardized mean difference = 0.59) which compares well with the efficacy of other proven psychological treatments for tinnitus. Clinically significant, reliable reduction in a standardized measure of psychological distress was reported by 49% of patients, with additional reductions in anxiety, depression and disability, all sustained for six months [1]. Some patients felt that mindfulness led to ‘better quality of life’ [4]. Recent research found that broad benefits can persist for more than five years [5], which reduces re-referral rates and hence offers significant economic savings.

MBCT-t is highly acceptable (rated as 8.2/10 for usefulness, 8.4/10 for relevance) with high session attendance (86%) and low dropout rates (9%) [1]. In a robust qualitative study [4] patients described how mindfulness can “retrain the brain”, so they are no longer “at war with the noise”, and “the effect of tinnitus (is) dramatically less”. In the absence of a ‘cure’ to ‘silence’ tinnitus, these findings offer patients real hope [1,2,4].

3. References to the research

The key research has been published in leading peer-reviewed journals in Clinical Psychology, Otorhinolaryngology and Speech and Hearing, with broad reach to a range of professional groups.

  1. McKenna, L, Marks, E, Hallsworth, C & Schaette, R 2017, 'Mindfulness Based Cognitive Therapy compared to Relaxation Training for Chronic Tinnitus: A Randomized Controlled Trial', Psychotherapy and Psychosomatics, vol. 86, no. 6, pp. 351–361. https://doi.org/10.1159/000478267

  2. McKenna, L, Marks, E & Vogt, F 2018, 'Mindfulness based cognitive therapy for chronic tinnitus: evaluation of benefits in a large sample of patients attending a tinnitus clinic', Ear and Hearing, vol. 39, no. 2, pp. 359 - 366. https://doi.org/10.1097/AUD.0000000000000491

  3. Marks, E, Smith, P & McKenna, L 2019, 'Living with tinnitus and the healthcare journey: An interpretative phenomenological analysis', British Journal of Health Psychology, vol. 24, no. 2, pp. 250-264. https://doi.org/10.1111/bjhp.12351

  4. Marks, E, Smith, P & McKenna, L 2020, 'I wasn't at war with the noise: How Mindfulness Based Cognitive Therapy changes patient's experiences of tinnitus', Frontiers in Psychology, vol. 11, 483. https://doi.org/10.3389/fpsyg.2020.00483

  5. Marks, E, McKenna, L & Vogt, F 2020, 'Mindfulness Based Cognitive Therapy for tinnitus: Evaluation of long-term outcomes', Clinical Psychology Forum, vol. 2020, no. 334, pp. 45-50.

Grant funding:

A Randomized Controlled Trial investigating the efficacy of MBCT for tinnitus. GBP75,739 (Dec 2013 to Dec 2016). Awarded by the BTA to Dr Laurence McKenna (Chief Investigator), Dr Elizabeth Marks, Roland Schaette, Roshini Alles (Co-investigators). The research started at Royal National Throat Nose and Ear Hospital, but a distinct and significant contribution was made by Dr Marks at the University of Bath since 2015 in data collection, management, analysis, writing up and dissemination of all underpinning research. The grant ended in December 2016, and as with most projects, ongoing dissemination and impact translation activity has continued ever since.

4. Details of the impact

Overview

The research proved MBCT-t is effective and acceptable. Since dissemination in 2017, it changed clinical practice, national and international clinical guidelines, advice offered globally and professional tinnitus training. Multiple centres since report effectiveness and long-term benefits, describing how MBCT-t makes “ an incredible difference to… patients” [G] and positive patient feedback describing it as “wonderful” [D] . Public engagement raised awareness of mindfulness for tinnitus. At least 5,000 UK tinnitus patients have already benefitted from mindfulness treatments, largely because of the research . Considering the prevalence and costs of persistent tinnitus, and lack of evidence for other treatments, the research has led to a significant reduction in the economic and health burden of tinnitus upon individuals, healthcare services and society.

Adoption of mindfulness for tinnitus in UK clinical practice

The British Tinnitus Association (BTA), a world-leading tinnitus charity, supporting a million people globally each year, reports significant clinical changes due to the research. In 2020 they stated that “ because of research evidence… published by Dr Marks” at least 49 UK audiology services now integrate “mindfulness… into their treatments for tinnitus”. Clinical testimonies indicate “ 5,000 patients have benefitted from mindfulness in just the past 2–3 years, from a baseline of almost zero prior to dissemination of Dr Marks’ research”. This estimate of 5,000 is based only upon “ testimonies from five [5] services” so “ the total number of patients benefitting from mindfulness in the past few years is… likely to be far higher” [C].

The Clinical Director of a large UK audiology hospital (Royal National ENT and Dental Hospital - RNENTDH) also reported large changes to clinical practice due to the research. From a baseline of 10 patients, mindfulness interventions now reach 865 patients annually (3,000 to date). Mindfulness has become “embedded within daily clinical practice… the benefits are likely to continue to have a positive impact on… thousands of patients” [D].

Embedded image

Figure 1: Change in clinical practice in 5 UK audiology services: Number of patients ever receiving mindfulness before research was disseminated (pre-2017) compared to number who have received mindfulness since research was disseminated (post-2017) [C]

The research directly influenced clinical practice in multiple services [C,D,E,F,G]. Mindfulness therapies were rarely offered to tinnitus patients prior to 2017. Publication of the research supported changes in service provision, and mindfulness is now offered to hundreds of tinnitus patients annually (see Figure 1). Reports from the BTA, RNENTDH and other testimonial letters directly attribute these changes to Dr Marks’ research [C,D,E,F,G]. For example, an Advanced Audiologist at St George’s Hospital testifies that Dr Marks’ research “ significantly change(d) the way that we operate our clinical services for tinnitus” [G].

The research also underpins recommendations in the 2018 Tinnitus Decision Aid [I], a new clinical tool that now promotes mindfulness and other psychological treatments to patients and audiology clinicians. The BTA states this is an “ important development in the field’ [C].

Integrating MBCT into International Policy and Advice

The first NICE guidelines for tinnitus management were published in 2020, stating that “ MBCT should be considered” [Ai, 1.5.4] within a stepped-care approach. The research [1] clearly influenced this conclusion, being the most robust evidence for mindfulness, rated as “critical” importance and “high to moderate” quality (Aii, pp232-234, table 58) compared with the three other mindfulness trials, rated as “very low” quality (Aii, pp.234-236 tables 59,60). Health economic modelling based on [1] supports MBCT-t as the least expensive option within a stepped-care model [Aii, p.67], demonstrating the significant economic benefits of MBCT-t, as it reduces the burdens of tinnitus in the most cost-effective way. The first European tinnitus guideline (2019) [B] for pan-European healthcare professionals recommends that “ information that should be given to patients” includes mindfulness since the underpinning research [1] indicates it is “ feasible as a treatment for tinnitus” [B p.S33].

In 2018 the BTA published new advice on mindfulness for tinnitus, based on the research [1,2], in collaboration with Dr Marks [H]. This advice has reached 1,000s of people (100s per annum) via UK Tinnitus Information Days, and over 9,000 via their website (50% internationally) last year, with numbers increasing over time (Figure 2) [C].

Embedded image

Figure 2: BTA website views of mindfulness advice based on the underpinning research [C]

Improved teaching and training

The research changed professional audiology training. Since 2015, Dr Marks has offered annual masterclasses in MBCT-t at the UCL Ear Institute [C], at BTA training days, and has trained 13 clinicians at the RNENTDH in MBCT-t [D]. Since 2017, a Senior Lecturer in Audiology at the University of Manchester used the research to develop audiology training to include mindfulness [C].

Benefitting patients and reducing re-referral rates

By having a “ direct impact on the clinical activity of multiple audiology services across the UK” the research has benefitted patients via “ positive experiences, high satisfaction, good outcomes and low re-referral rates”, a substantial improvement upon the “low satisfaction and… high re-referral rates (associated) with more traditional treatments” [C]. In 2019, St George’s Hospital reported that 2 years of delivering MBCT-t had led to reduced tinnitus severity, high patient satisfaction (rated 4.6/5), a re-referral rate of just 1% is “ far lower than those receiving standard care” [G] and associated cost savings. Feedback from MBCT-t recipients is positive, with MBCT described as “ life-changing”, “excellent”, “magnificent”, and “the best national health treatment I have had” [D].

Public engagement

Since 2017, growing media coverage has increased awareness of and engagement in mindfulness for tinnitus by patients, clinicians [C] and services [D]. This includes reports in high-profile media outlets ( The Observer, BBC Radio Bristol (2017), *The Times (*2018), Good Houskeeping Magazine (2019), NHK Japan TV (2020) [D]. Furthermore, in 2018 the research [1] won the prestigious BTA Shapiro Prize and a finalist position in the Bath and Bristol Healthcare Awards.

5. Sources to corroborate the impact

  1. NICE guideline [NG155] Tinnitus: Assessment and Management (2020).

i) Overview – As PDF. Also available at: https://www.nice.org.uk/guidance/ng155

ii) Full evidence review for psychological therapies: https://www.nice.org.uk/guidance/ng155/evidence/l-psychological-therapies-pdf-255229407253

  1. Cima, R.F.F, Mazurek, B., Haider,H., Kikidis,D., Lapira, A., Norena, A., Hoare, D.J. (2019) A Multidisciplinary European guideline for tinnitus: Diagnostics, assessment and treatment. *HNO 67 (Suppl1):*S10-S42 (TINNET European Guidelines). As PDF. Also available at: https://link.springer.com/content/pdf/10.1007/s00106-019-0633-7.pdf

  2. Testimonial letter 1 - Chief Executive, British Tinnitus Association, 1 September 2020.

  3. Testimonial letter 2 - UCLH Manager of Specialist Hospitals, Royal National ENT and Dental Hospitals (RNENTD) 5 February 2020.

  4. Testimonial letter 3 - Hearing Therapist, HearBase, 23 November 2019.

  5. Testimonial letter 4 - Hearing Therapist, Brighton & Sussex University Hospital Trust, 18 August 2020.

  6. Testimonial letter 5 - Advanced Audiologist, St George’s University NHS Foundation Trust, 24 December 2019.

  7. Mindfulness for Tinnitus Leaflet (based on underpinning research), for patients and clinicians (April 2019), available on BTA website: https://www.tinnitus.org.uk/Handlers/Download.ashx?IDMF=2b83f18e-0944-4617-939e-4d02e082969b

  8. Decision Aid Tool (2018) Pages 1 and 2 (Underpinning research cited on page 1 in support of various psychological therapies for tinnitus which, as the citations indicate, necessarily include mindfulness). https://www.tinnitus.org.uk/decision-aid

Submitting institution
The University of Bath
Unit of assessment
4 - Psychology, Psychiatry and Neuroscience
Summary impact type
Societal
Is this case study continued from a case study submitted in 2014?
No

1. Summary of the impact

Dr Walker’s research on driver behaviour demonstrated that most of the variance in proximity (and therefore collision risk) between a cyclist and an overtaking motorist derives from factors outside the cyclist’s control. This research directly led to an Australian charity lobbying for legal changes in that country, leading to all Australia’s eight states and territories implementing the “A Metre Matters” law between 2014 and 2020. Government evaluations of these new laws let us estimate that they are saving 7 lives per year, preventing 260 serious injuries per year and benefiting the economy of Australia by over AUD34,000,000 per year due to these casualty reductions.

2. Underpinning research

In 2007, Dr Walker published the first of two major empirical studies, conducted at University of Bath, on what affects the safety margin when motorists pass bicyclists on roads. These studies took objective, in vivo measurements of driver behaviour, measuring the space drivers left when overtaking a bicyclist in real traffic – something that had not been done before [1-2, see also 3 for further analysis and theoretical expansion]. Theoretically, the studies were rooted in the psychology of stereotype activation, and looked for systematic variations in drivers’ overtaking behaviours as a function of the rider’s appearance and behaviour. The visual appearance of the rider was posited to lead to a rapid assessment from the approaching motorist, which would be influenced by any stereotypes or other such top-down influences already present in that driver. These studies revealed that driver behaviour indeed varied systematically as a function of how the rider looks or acts. For example, drivers tended to leave more space when passing female riders compared to male riders (a finding since replicated in the USA and Taiwan) and less space when bicyclists rode away from the edge of their lane or wore a helmet. The second study [2] showed that driver behaviour is not much changed by other key variables such as the rider’s clothing (e.g., high-visibility jackets) or markers of the rider’s experience. That study included a power analysis to show that the lack of any effect was unlikely to have been a result of under-sampling.

These studies collectively show that drivers respond to bicyclists’ appearance in a way that can affect safety. Critically, however, the studies also showed that bicyclists cannot do much about this phenomenon to make themselves safer, and the majority of variance in safety during overtaking manoeuvres lies in factors outside the bicyclists’ control. For example, Walker [1] found that 92% of variance in passing proximity remained unexplained even after all the bicyclist’s behaviours, such as lateral position on the road, had been included in the analysis. The studies therefore showed that action is needed from motorists and/or policy makers if safety is to be improved, rather than from the bicyclists. This development is important, as road safety policy up to this point had traditionally focused on encouraging vulnerable road users to be the ones to act (e.g., by wearing bright clothing or by riding on the “right” part of the road) rather than motorists.

3. References to the research

  1. Walker, I 2007, 'Drivers overtaking bicyclists: Objective data on the effects of riding position, helmet use, vehicle type and apparent gender', Accident Analysis and Prevention, vol. 39, no. 2, pp. 417-425. https://doi.org/10.1016/j.aap.2006.08.010

  2. Walker, I, Garrard, I & Jowitt, F 2014, 'The influence of a bicycle commuter's appearance on drivers’ overtaking proximities: an on-road test of bicyclist stereotypes, high-visibility clothing and safety aids in the United Kingdom', Accident Analysis and Prevention, vol. 64, pp. 69-77. https://doi.org/10.1016/j.aap.2013.11.007

  3. Robinson, D & Walker, I 2019, 'Bicycle helmet wearing is associated with closer overtaking by drivers: A response to Olivier and Walter, 2013', Accident Analysis and Prevention, vol. 123, pp. 107-113. https://doi.org/10.1016/j.aap.2018.11.015

The original 2007 study was funded by the EPSRC to Ian Walker (as sole investigator), University of Bath, Grant reference EP/D059593/1. GBP5,612, Feb – Aug 2006.

4. Details of the impact

Legal changes based on Dr Walker’s research are saving around 7 lives each year in Australia, preventing around 260 more serious injuries, and saving the Australian economy more than AUD34,000,000 annually due to lives saved.

Dr Walker’s research demonstrated empirically that the variance in safety during overtaking manoeuvres attributable to the rider’s appearance or actions was far lower than the variance in safety associated with non-cyclist variables such as inter-driver differences and situational factors. In other words, Walker’s work demonstrated for the first time that how a bicyclist looks or acts could only ever be a minor factor in determining their safety, and the behaviour of the overtaking driver, and their interaction with the physical environment, is far more important. As such, the research demonstrated that, above all, it is driver behaviour that needs to change to achieve greater safety. This insight directly informed policy changes, and also fed into public understanding of this road safety topic.

How the Impact occurred: The Amy Gillett Foundation

Walker’s research has proved particularly important in Australia, which has taken the lead in legislating for bicyclist safety during overtakes. Australia had identified collisions during overtaking as a critical problem: at the time this research began in 2006, central government in Australia was reporting “the most common type of crash in which cyclists were fatally injured was the cyclist being hit from behind by a motor vehicle travelling in the same lane in the same direction” [E, p.2]. In 2008, Dr Walker’s research was taken up by the Amy Gillett Foundation, a leading cycling safety organisation in Australia, driven by a core mission to reduce the death and injury of cyclists. The Amy Gillett Foundation describe Dr Walker’s findings as “pivotal” [A, B], explicitly listing it as the starting point for their A Metre Matters campaign to address overtaking collisions for bicyclists [A, B]. “Dr Walker’s finding about the variation in lateral clearance distance was the specific feature of the paper that provided insights to the campaign”, they write in their evidence letter [B]. A member of the Foundation used the methods and findings from Walker’s study as the basis for additional research in the Australian context that was published in 2011, and the combined scientific data [A,B] allowed the Foundation to argue to government that it was specifically driver behaviour during overtakes that needed regulation if bicyclist safety was to be improved. In 2009 The Foundation’s A Metre Matters campaign was launched by the CEO of the Amy Gillett Foundation, with the Australian Minister for Infrastructure and Transport, Anthony Albanese. Between 2010 and 2012 an education campaign was rolled out across Australia including billboards and advertisements. However, the campaign aimed to go beyond education, to instigate legal changes.

Influencing legal changes in Australia

As detailed on the Foundation’s website [A], between 2014 and 2020 all of Australia’s 8 states and territories trialled, and then adopted, laws specifying minimum passing clearances when overtaking a bicyclist, and in each case this was directly in response to the charity’s lobbying [A]. The Amy Gillett Foundation lists that one of its missions is to continue to “promote actions to make cycling safer in Australia, including the A metre matters laws across Australia, to make sure drivers pass cyclists safely” [G]. The population of Australia potentially affected by this law can be estimated from the overall population of 25,000,000. Based on data from 2019, for cyclists aged 50 or over (the population with the lowest figures, thereby providing the most conservative estimate), at least 6% of Australians cycle on a weekly basis, 10% monthly and 17% yearly. This equates to at least 1,500,000 people who cycle weekly, 2,500,000 monthly and 4,250,000 yearly. On average 31.7% of cycling was for transport purposes, suggesting at least this proportion of cyclists are road-users. Using these extremely conservative figures, this would indicate that across the whole population, for the lifetime of legal changes that can be traced back to Dr Walker’s research, the changes protect approximately 475,000 people weekly, 792,500 monthly and 1,347,250 yearly [H, p.9, 11]. In particular, considering the number of commuters, figures from 2016 indicate that there were a combined total of 75,807 commuters in Melbourne, Sydney, Brisbane, Perth, Adelaide, Darwin and Hobart, which suggests that there are at least this many commuters across Australia protected by the new laws [I].

Saving lives, reducing injury rate and benefitting the economy through the A Metre Matters law

In each state or territory, the new overtaking laws were first introduced from 2014 onwards on a trial basis and later made permanent once official trials demonstrated they were effective at changing behaviour, and thereby improving road safety (for example see [C] for the New South Wales evaluation of their passing law trial). As the states would not introduce permanent legal changes until convinced they would work to improve safety, these government trials provide powerful evidence for the efficacy and impact of these laws that were underpinned by Dr Walker’s research. The government evaluation from New South Wales estimated, after analysing 5,979 behavioural observations, as well as police records, that minimum passing distances led to a 15% reduction in casualty crashes [C, p.7]. In the years preceding the laws, there was an average of 48 cyclist deaths per year in Australia [E, p.5]. The New South Wales data thereby allow us defensibly to estimate the laws derived from Dr Walker’s research are saving around 7 lives each year across the country. We can also estimate that these laws are preventing approximately 260 more serious injuries [D – Note that Australia’s public data only report deaths, not injuries, so this value is estimated using the UK death:serious-injury ratio for cyclists, which should be comparable]. Australia’s statistical value of life is AUD4,900,000 [F], meaning that even in the crudest monetary terms, and only counting the deaths, the safety improvements arising from this law are worth more than AUD34,000,000 to the Australian economy each year.

5. Sources to corroborate the impact

A. Amy Gillett Foundation “A Metre Matters” timeline (accessed 18 January 2021). https://www.amygillett.org.au/a\-metre\-matters

B. Letter from the Amy Gillett Foundation, 12 April 2017 explaining their use of Dr Walker’s research as the starting point for their research and campaigning programme.

C. New South Wales government (2018). Trial of the Minimum Passing Distance Rule for drivers passing cyclists: Summary of findings. https://roadsafety.transport.nsw.gov.au/downloads/mpd-trial-summary.pdf

D. UK data (which are broadly representative for western countries) for 2018 show 37 serious pedal cycle injuries for each death.

E. Australian Transport Safety Bureau (2006). Deaths of Cyclists due to Road Crashes. https://www.infrastructure.gov.au/roads/safety/publications/2006/pdf/death\_cyclists\_road.pdf

F. Australian Government (2019). Best Practice Regulation Guidance Note Value of Statistical Life.

https://www.pmc.gov.au/sites/default/files/publications/value\-of\-statistical\-life\-guidance\-note\_0\_0.pdf

G: Amy Gillett Foundation “About Us” (accessed 18 January 2021).

https://www.amygillett.org.au/homepage/about-us

H: Austroads (2019). Australian Cycling Participation: Results of the 2019 National Cycling Participation Survey. https://www.cycle-helmets.com/ncp-2019.pdf

I: Statista (2016). Number of bicycle riders commuting to work across Australia in 2016, by metropolitan area.

https://www.statista.com/statistics/947237/australia-number-of-cyclists-by-metropolitan-area/

Submitting institution
The University of Bath
Unit of assessment
4 - Psychology, Psychiatry and Neuroscience
Summary impact type
Societal
Is this case study continued from a case study submitted in 2014?
No

1. Summary of the impact

Based on University of Bath research, Criminal Justice System policy and practice have improved to better support autistic people through:

  1. Shaping the National Autistic Society (NAS) Best Practice Guidance 2017 and 2020;

  2. Role-specific autism training for police officers, mandatory for 2,000 frontline staff since 2018;

  3. Recommended national roll-out of role-specific police training by the All Party Parliamentary Group on Autism in 2019;

  4. Informing custody suite design plans for a 24-cell trial at Keynsham Police Station in 2019, reducing adverse incidents during custody;

  5. Developing alternative police interview models, now used by legal professionals to improve the reliability of evidence provided by autistic witnesses, victims and defendants;

  6. Routine screening of autistic traits in suspected cyber-criminals by all Regional Offices of the National Crime Agency since 2019.

2. Underpinning research

Autistic people are substantially overrepresented in all Criminal Justice System (CJS) populations, as witnesses, victims and defendants. For example, the National Autistic Society Careless Report (2014) identified that 49% of the 1,344 autistic individuals surveyed had been victims or perpetrators of crime. University of Bath research with autistic witnesses, victims and suspects, as well as police officers, has identified positive and negative aspects of lived experience within the CJS (including perceptions of any adjustments made) and how differences in autistic communication and cognition impact upon their testimony and the efficacy of questioning strategies. Large scale surveys of these groups, led by Maras between 2014 and 2016, identified the negative experiences of autistic people within the CJS emanating from difficulties in social communication, and the associated challenges faced by police officers carrying out their duties when this involved autistic people [1]. In particular, the autism community felt that police and other legal professionals often lack understanding about autism and fail to make appropriate adaptations to support their needs; at the same time, Maras showed that many police officers felt poorly equipped to work with autistic people. Indeed, just 37% of the 394 officers who took part in the research had received prior training on autism, despite 92% feeling role-specific training was needed [1].

Issues identified as important by the autistic community largely related to a need for adjustments, especially in custody, and sensitivities around disclosure. For example, only one-third of autistic individuals disclosed their diagnosis to police/CJS professionals, due to fears that it would not make any difference to the support or adaptations that they received and might even result in negative perceptions and stigmatisation by police. Critically, however, Maras’ subsequent experimental work conducted between 2018 and 2019 showed that, contrary to these concerns, knowledge of an individual’s autism diagnosis actually results in more positive perceptions and judgements about autistic individuals – both as witnesses and defendants – thus highlighting the benefits of disclosure for the autism community, a process which is now supported through the role-specific training [2]. In contrast to beliefs widely-held by many, Bath research has also identified that while autistic traits are associated with a greater risk of committing cybercrime due to superior IT skills, a diagnosis of autism itself is associated with a decreased risk of committing cybercrime [3].

A related line of research between 2013 and 2014 has shown how current police interviewing techniques fail to support differences in the way that autistic people remember and recall events, therefore hindering their ability to provide reliable evidence [4]. This research demonstrated that the use of the ‘gold standard’ free recall and open questions in police interviews is particularly difficult for autistic individuals due to difficulties in social communication coupled with specific episodic memory difficulties. To address this, between 2015 and 2019, Maras and colleagues developed and empirically tested new witness-driven police interviewing techniques to enable autistic witnesses and victims to provide their best evidence within a legally appropriate framework. These include a novel Witness-Aimed First Account (WAFA) interview model, whereby the witness self-segments the event at the outset into more manageable ‘chunks’ of information, which they then recall in detail piece-by-piece [5]. Maras has also developed techniques for probing for further information from witnesses, such as instructional support to optimise accuracy as well as specific frameworks for providing prompts to overcome difficulties with open questions and diagram-assisted questioning [6].

3. References to the research

  1. Crane, L, Maras, KL, Hawken, T, Mulcahy, S & Memon, A 2016, 'Experiences of autism spectrum disorder and policing in England and Wales: surveying police and the autism community', Journal of Autism and Developmental Disorders, vol. 46, pp. 2028-2041. https://doi.org/10.1007/s10803-016-2729-1

  2. Maras, K, Marshall, I & Sands, C 2019, 'Mock juror perceptions of credibility and culpability in an autistic defendant', Journal of Autism and Developmental Disorders, vol. 49, pp. 996-1010. https://doi.org/10.1007/s10803-018-3803-7

  3. Payne, K-L, Russell, A, Mills, R, Maras, K, Rai, D & Brosnan, M 2019, 'Is there a relationship between cyber-dependent crime, autistic-like traits and autism?', Journal of Autism and Developmental Disorders, vol. 49, pp. 4159-4169. https://doi.org/10.1007/s10803-019-04119-5

  4. Maras, KL, Mulcahy, S, Memon, A, Picariello, F & Bowler, D 2014, 'Evaluating the effectiveness of the Self- Administered Interview© for witnesses with autism spectrum disorder', Applied Cognitive Psychology, vol. 28, no. 5, pp. 693-701. https://doi.org/10.1002/acp.3055

  5. Maras, K, Dando, C, Stephenson, H, Lambrechts, A, Anns, S & Gaigg, S 2020, 'The Witness-Aimed First Account (WAFA): A new technique for interviewing autistic witnesses and victims', Autism, vol. 24, no. 6, pp. 1449-1467. https://doi.org/10.1177/1362361320908986

  6. Norris, J, Crane, L & Maras, K 2020, 'Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews', Autism, vol. 24, no. 6, pp. 1506-1520. https://doi.org/10.1177/1362361320909174

R1, R2, R3, R5 and R6 represent leading peer-reviewed autism journals detailing novel research paradigms for hard-to-reach populations within the criminal justice system for the first time.

Funding:

Maras, K. Reporting by people with autism: A new evidence-based supportive model for information gathering in applied interview contexts. ESRC Future Research Leaders award. 31 August 2017 – 29 February 2020. GBP223,644.

Brosnan, M., Russell, A. and Maras, K. Cybercrime, autistic-like traits and autism. Barclays Bank/ National Crime Agency. 1 September 2016 - 31 August, 2018. GBP109,000.

Maras, K. The effect of working memory load on effective information filtering in autism spectrum disorder. BA/Leverhulme small grant. 1 May 2015 – 30 April 2018. GBP9,262

4. Details of the impact

Maras’ research has shaped local and national changes in training, policy and practice which has improved the experiences and outcomes of autistic people in the Criminal Justice System (CJS) in the UK.

Informing best practice guidance and shaping strategy at the National Autistic Society

The National Autistic Society commented that “ Dr Maras’ research has provided a crucial evidence-base for best practice by criminal justice system professionals when working with autistic people” [A].

Maras’ findings regarding interactions between autistic people and police [1], diagnosis disclosure [2], and effective interviewing techniques for autistic individuals [4-6] are directly translated into comprehensive best practice guidance in the National Autistic Society (NAS) Guidance for Criminal Justice Professionals, revised in 2017 [Ci] and 2020 [Cii]. The Guidance describes in detail how evidence-based techniques developed by Maras (including WAFA, sketching and diagram-assisted questioning [Cii, pp. 39-43]) can be applied for autistic interviewees [C]. As a result, Maras’ interview techniques are being effectively utilised in the field, with CJS professionals finding them to be effective even when the interviewee has a learning disability and is very limited in free recall [I]. Every local UK police force has received a copy of the NAS Guidance and the online version has been downloaded over 4,000 times [A]; it is also currently being translated into different languages. The NAS Guide is referenced in the Independent Office for Police Conduct’s July 2019 Learning the Lessons magazine [D, p.5] and the College of Policing’s Authorised Professional Practice on mental health (revised in 2019) [E].

Maras’ research regarding the experiences, treatment and outcomes of autistic people in the CJS has also provided an evidence base to inform NAS strategy more broadly. Indeed, over both policy and practice, the combined impact of Maras’ work “ has been of enormous value politically” enabling the National Autistic Society to “ focus our support, lobbying and influence where it is most needed” [A].

Improving treatment of autistic individuals by Avon and Somerset Police

Avon and Somerset police stated that “ Findings from Dr Maras’ research” have been “invaluable in providing evidence for best practice for our officers and have had an impact on the Criminal Justice system in improving the treatment of autistic people and the reliability and credibility of their evidence” [G].

Maras’ research led to role-specific online autism training for Avon and Somerset Police, comprising modules on first response, custody and interviewing. The training was co-produced in 2018 through active collaboration between Maras and Avon and Somerset Police, and is now mandatory for all of their frontline police staff (approximately 2,000 officers) [G]. The package is currently being reviewed by the College of Policing and the National Police Chiefs Council. The content of the training is driven by Maras’ findings that have identified police training needs [1], the importance of diagnosis disclosure [2], and her research developing new interviewing techniques for autistic individuals [5, 6]. Evaluation data indicates that the 648 police officers who have completed the training demonstrated improvements in autism knowledge and awareness [G]. Consequent changes to practice as a result have been universally beneficial; for example, the Avon and Somerset Force Lead for Autism and Head of Policy for the National Police Autism Association highlighted the positive feedback they have received, for example that “ the insight it provides aids our necessary learning that approaches that are helpful for the neurodiverse are helpful for everyone”. The training has also proven beneficial for supporting officers at an organisational level within the police service, such as in recruitment or promotion interviews, and has informed policy regarding autism-friendly policing [G]. Dorset Police, Devon and Cornwall Police, Essex Police and the Metropolitan Police Service are actively seeking to adopt the training for their forces [G].

In 2019 Maras’ research [1] has also informed the design plans for adapting custody suites and related processes at Avon and Somerset Police, including 24 cells at Keynsham Police Station, and 36 cells across Avon and Somerset [G]. Plans include ensuring that cells are autism-friendly (including soft muted wall colour in cells, controllable LED lighting, TVs in cells, clearer and more detailed explanation of procedures) and autism training for custody staff [F]. Whilst COVID-19 has resulted in delays in physical changes to all cells, adaptations to custody processes are underway. Indeed, as a result of Maras’ research [1], Avon and Somerset is the first Force in the UK to change Force policy to mandate (since February 2018) that all detainees who are known or suspected to be autistic are provided with an Appropriate Adult (whose role it is to act as a safeguard and provide independent support to any suspect deemed to be vulnerable) in custody [G].

Avon and Somerset Police Force’s Lead for Autism states: “ Findings from Dr Maras’ research have been of direct relevance for the training and adjustments we have made within our force to optimise how we work with autistic people... The knowledge, training and guidance that we have produced as a result of the research has been invaluable in improving the ways that … incidents are handled” [G].

Guidance for advocates in The Advocate’s Gateway toolkits

Maras’ research regarding best practice interviewing of autistic individuals feeds into detailed guidance in Toolkits for The Advocate’s Gateway [Ji; Jii]. The toolkits are used by solicitors and barristers across the UK. Since June 2016, downloads of the ‘Planning to question someone with an autism spectrum disorder’ and the ‘Memory and sensory issues in autism’ toolkits have exceeded 6,422 and 1,988 respectively [Jiii].

Screening for autistic traits by the National Crime Agency

Bath research has also changed police approaches to cybercrime and interviewing. Specifically, as a direct consequence of the research [3], suspects for cybercrime are now routinely screened for “autistic traits” by the National Crime Agency. The Senior Officer at the National Crime Agency states: “ Research at Bath has been invaluable in updating our intelligence regarding the role of autistic traits (not autism) in cyber-dependent crime…Our Regional Organised Crime Units (ROCUs) now routinely screen for autistic traits at first contact with suspects” [H].

Shaping National Policy

Maras’ research has had a beneficial impact on the policy conversation and evolving strategy concerning the treatment of autistic individuals in the CJS. Maras was a member of the cross-government working group for the refresh of the 2014 Adult Autism Strategy and a witness on the 2019 Access to Justice inquiry session for the All-Party Parliamentary Group on Autism (APPGA), having been invited due to her research on the experiences of autistic people in the CJS and the efficacy of current police practice. Maras’ evidence-based recommendations form part of a wider portfolio of recommendations and evidence referenced in the resulting report. For example, the report states: “ In the new autism strategy, the Government should commit to making autism training mandatory for all police officers… to require all new police recruits to undergo autism-specific training, as well as creating a programme for all existing officers to receive this training” [B, p.47, 50]. The report also cites examples of the good practice that have been developed via her local collaboration with Avon and Somerset Police, including the mandatory provision of Appropriate Adults in all cases where autism is known or suspected [B, p.48].

Maras’ work locally with Avon and Somerset Police on the design of autism-friendly custody suites has also been incorporated at a national level into the Home Office’s 2019 National Custody Design Board Model [K].

5. Sources to corroborate the impact

[A] Testimonial: Criminal Justice System Manager, National Autistic Society, 23 November 2020.

[B] The National Autistic Society and All Party Parliamentary Group on Autism (APPGA): The Autism Act, 10 Years On: A Report from the All Party Parliamentary Group on Autism on understanding, services and support for autistic people and their families in England (2019).

[C] Autism: A Guide for Police Officers and Staff (National Autistic Society) i) 2017 ii) 2020.

[D] Learning the Lessons magazine, Custody, Issue 35, July 2019. www.policeconduct.gov.uk/sites/default/files/Documents/Learningthelessons/35/LearningtheLessons_Issue35_July_2019.pdf

[E] Screenshot of police webpage. Mental Health, Mental Vulnerability and Illness, 1 August 2019. www.app.college.police.uk/app-content/mental-health/mental-vulnerability-and-illness/#further-information

[F] Testimonial: Head of Criminal Justice, Avon & Somerset police, 26 November 2020.

[G] Testimonial: Force Lead for Autism, Avon and Somerset Police, 7 December 2020.

[H] Testimonial: Senior Officer, National Crime Agency, 22 September 2020.

[I] Testimonial: Registered Intermediary, Department of Justice, Northern Ireland, 24 November 2020.

[J] The Advocate’s Gateway toolkit.

i) The Advocate’s Gateway. Toolkit 3: Planning to question someone with an autism spectrum disorder including Asperger syndrome. 1 December 2016.

ii) The Advocate’s Gateway. Toolkit 15: Witnesses and defendants with autism: Memory and sensory issues. 27 February 2015.

iii) Google Analytics data for Toolkit 3 (1 June 2016 – 3 May 2020): Planning to question someone with an autism spectrum disorder including Asperger syndrome and Toolkit 15: Witnesses and defendants with autism: Memory and sensory issues.

[K] Factual statement: Commercial Manager, Police and Fire Team, The Home Office, 17 December 2019.

Submitting institution
The University of Bath
Unit of assessment
4 - Psychology, Psychiatry and Neuroscience
Summary impact type
Health
Is this case study continued from a case study submitted in 2014?
No

1. Summary of the impact

Research at University of Bath has improved the prevention and treatment of adolescent self-harm through the creation of the first self-help prevention app designed specifically for high risk young people (aged 12 - 17) who self-harm.

• The BlueIce app is endorsed on the NHS app library. It is prescribed by 18 Child and Adolescent Mental Health Services across the UK and is used by 2,520 young people.

• Benefits to users are measurable. 73% of young people report reduced self-harm, equivalent to a reduction of 10 episodes per user over a 12-week period.

• Improvements in the trial sample alone saved the NHS an estimated GBP69,923; national roll-out would save the NHS an estimated GBP1,700,000 per year.

2. Underpinning research

**2. Underpinning **

Self-harm is intentional self-poisoning or self-injury, irrespective of type, motive or the extent of suicidal intent. Adolescent self-harm is alarmingly common with our school survey of young people aged 12 - 16 (G4) finding that 15% reported acts of self-harm over the past 12 months (R6). Whilst adolescent self-harm is increasing (Moran et al, 2017) effective interventions are limited. A recent Cochrane Review concluded that “ there is not much evidence on which to draw conclusions on the effects of interventions for self-harm in this population” (Cochrane Review 2015, p 44) recommending that new therapeutic interventions should be developed in collaboration with patients to ensure that they meet their needs.

Digital technology offers a way of increasing access to care and improving health outcomes. Adolescents are familiar with, and frequent users of, technology. In 2017 we undertook a survey of adolescent girls (G3) which showed that 97% regularly used smartphone apps (R4). We convened focus groups with young people with a lived experience of self-harm and found that they positively endorsed the idea of a smartphone app as a way of delivering a self-help intervention.

A systematic review (G3) was undertaken in 2017 to determine what was currently available for young people (under 18) with mental health problems (R5). Our review identified 15 apps developed specifically for young people, of which only 2 had been subject to any evaluation and none had been developed for young people who self-harm.

University of Bath led a novel co-design process with young people with a lived experience of self-harm adopting a user-centred, agile development process to create, refine, and evaluate BlueIce. This involved an ongoing collaboration between academics (University of Bath), product users (young people), NHS clinical staff (Oxford Health NHS Foundation Trust), and app developers (MyOxygen).

Embedded image

We started to develop BlueIce in 2016, an app that provides a personalized toolbox of strategies based on evidence-based interventions (Cognitive Behaviour Therapy and Dialectical Behaviour Therapy) that can be accessed 24 hours 7 days a week (R3). It includes a mood diary, menu of personalized mood-lifting activities, and automatic routing through safety checks to delay or prevent self-harm. Mood-lifting activities include a personalized music library of uplifting music, photo library of positive memories, physical activities, mood-changing activities, audio-taped relaxation and mindfulness exercises, identification and challenging of negative thoughts, a contact list of key people to call or text, and distress tolerance activities (informed by DBT). After using the mood-lifting section, the young person re-rates their mood, and if the urge to self-harm has not reduced, they are automatically routed to emergency numbers (nominated contact, Childline, 111) they can call.

Given the absence of evidence to suggest that mental health apps could be helpful we

undertook an initial evaluation of BlueIce (G1 & G2) with 44 young people aged 12 - 17

attending specialist mental health services (CAMHS) who were self-harming (R3). Published in 2018, we found that BlueIce was safe, acceptable, easy to use and accessible (R2). Reductions in self-harm were reported by 73% of young people after using BlueIce for 12 weeks and there were significant reductions on symptoms of anxiety and depression (R1).

3. References to the research

[R1] Stallard, P, Porter, J & Grist, R 2018, 'A smartphone app (BlueIce) for young people who self-harm: open phase 1 pre-post trial', Journal of Medical Internet Research, vol. 6, no. 1, e32. https://doi.org/10.2196/mhealth.8917

[R2] Grist, R, Porter, J & Stallard, P 2018, 'Acceptability, Use, and Safety of a Mobile Phone App BlueIce) for Young People Who Self-Harm: Qualitative Study of Service Users’ Experience', Journal of Medical Internet Research, vol. 5, no. 1, e16. https://doi.org/10.2196/mental.8779

[R3] Stallard, P, Porter, J & Grist, R 2016, 'Safety, acceptability and use of a smartphone application, BlueIce, for young people who self-harm: protocol for an open Phase 1 trial.' Journal of Medical Internet Research, vol. 5, no. 4, pp. e217. https://doi.org/10.2196/resprot.6525

[R4] Grist, R, Cliffe, B, Denne, M, Croker, A & Stallard, P 2018, 'An online survey of young adolescent girls' use of the internet and smartphone apps for mental health support', BJPsych Open, vol. 4, no. 4, pp. 302-306. https://doi.org/10.1192/bjo.2018.43

[R5] Grist, R, Porter, J & Stallard, P 2017, 'Mental health mobile apps for preadolescents and adolescents: A systematic review.', Journal of Medical Internet Research, vol. 19, no. 5, e176. https://doi.org/10.2196/jmir.7332

[R6] Stallard, P, Spears, M, Montgomery, AA, Phillips, R & Sayal, K 2013, 'Self-harm in young adolescents (12–16 years): Onset and short-term continuation in a community sample', BMC Psychiatry, vol. 13, 328. https://doi.org/10.1186/1471-244X-13-328

Grants

G1. Stallard, P. BlueIce a smartphone app for young people who self-harm: ensuring quality. National Health Service England. March 2017 - March 2018. Grant awarded GBP66,423

G2. Stallard P. Facilitating the adoption of a digital intervention for young people who self-harm (BlueIce). Health Foundation small scale spread award. Nov 2016 - Dec 2017. Grant awarded GBP31,649

G3. Stallard P, Woodhouse W, Scully P, Maguire M. An evaluation of an innovative telephone app (BlueIce) for young people (aged 11 - 17) who self-harm. Health Foundation Innovating for Improvement. Nov 2015 - October 2016. Grant Awarded GBP74,164

G4. Stallard P, R. Araya, G. Lewis, K. Sayal, A. Montgomery, R. Anderson, P. Shoebridge, W. Woodhouse, R. Stevens. & M. Moldavsky. A single blind randomized controlled trial to determine the effectiveness of group cognitive behaviour therapy (CBT) in the prevention of depression in high risk adolescents. NIHR HTA. (6 March 2004). January 2008 - March 2011. Research Grant Awarded: GBP1,029,065

G5. Stallard P, Taylor G, Rhodes S, Medina-Lara A & Welsh G. A comparison of usual care versus usual care plus a smartphone self-harm prevention app (BlueIce) in young adolescents aged 12 - 17 who self-harm. National Institute of Health Research, Research for Patient Benefit (NIHR RfPB). September 2019 for 30 months. Grant awarded GBP350,000.

4. Details of the impact

Professor Stallard’s research has improved the mental health treatment for high risk young people who self-harm. The BlueIce research programme has produced a much needed novel, digital, self-help intervention for young people with mental health problems who engage in repeated and serious self-harm. BlueIce is being widely used (intervention adoption) and has demonstrated measurable reductions in self-harm (improved mental health) and estimated cost savings to the NHS (financial savings). Impacts available from 2017 are summarised below.

(a) Intervention adoption: BlueIce has attracted much local and national publicity including news stories on the ITV, Guardian and BBC (A, B, C). It is the only self-harm prevention app for children and young people recommended in the NHS Health Education England 2018 self-harm and suicide competence framework of good clinical practice (D). It is one of only 20 mental health apps/digital services to meet the rigorous standards for national endorsement on the NHS app library (E). BlueIce won the Innovation in Digital Health Award at the 2019 National Positive Practice in Mental Health Awards (F) and was highlighted as outstanding practice by the Care Quality Commission in a recent inspection (G). BlueIce is now available to child and adolescent mental health services (CAMHS) across the UK and has been prescribed by CAMHS across Bath and North East Somerset, Buckinghamshire, Cambridgeshire, East London, Wigan, Bolton, Salford, Manchester, Trafford, Bury, Heywood, Oldham, Tameside, Stockport, Oxfordshire, Swindon, Peterborough and Wiltshire to 2,520 young people with serious, repeated self-harm. Our aim is to make BlueIce available to all CAMHS in the UK and to extend access to young adults who self-harm.

Embedded image A collaboration with colleagues at the Murdoch Children's Research Institute, Melbourne, Australia (H) has resulted in BlueIce being made available via the Australian App Store (I) where it has now been downloaded on 2,760 occasions.

(b) Improved adolescent mental health: Our initial work showed that after using BlueIce for 12 weeks, 73% of young people reported that their self-harm had reduced by an average of 10 episodes per person (R1). There were significant post-use reductions on standardised measures of depression (Mood and Feelings Questionnaire: mean difference =4.91: t31=2.11; p=.04; 95% CI 0.17-9.64) and anxiety (Revised Child Anxiety and Depression Scale: mean difference=13.53: t30=3.76; p=.001; 95% CI 6.17-20.90) (R1). The independent feasibility study in Australia found that young people felt more able to manage suicidal thoughts and feelings after using BlueIce for 6 weeks (H). Young people involved in our current randomised controlled trial in the UK rate BlueIce highly (G5). Average ratings were 9.6/10 for ease of use, 7.1/10 for helpfulness, 8.0/10 would recommend BlueIce to a friend with an overall app rating of 4.1/5 stars.

For some young people BlueIce has resulted in life-changing improvements:

If CAMHS had given me that app around 3 or 4 years ago I wouldn’t be cutting now” (J).

I used to harm myself pretty much every day I think there were only a couple of days when I wouldn’t. Since having the app I’m like clean, I haven’t done anything” (J).

Parents also observed improvements:

“… it may not change the situation she’s struggling with, but it changes her and it’s a positive change, I don’t mean she’s bouncing round happy but more stable I guess is what I’m trying to say and it’s, it’s amazing” (J).

Finally, CAMHS professionals’ noted benefits:

“A ll ‘my girls’ (patients) are finding the app very helpful! From my point of view, the self-harming incidents are much less frequent for those using the app” (J).

Embedded image

(c) Financial savings. Study participants: Over the course of our study BlueIce prevented 295 episodes of self-harm in 28 young people (average of 10.5 episodes per person) (J). Because most adolescent self-harm does not result in Emergency Department treatment we modelled potential cost savings based on different assumptions (described in our Health Foundation Report p15-17 (J)). We estimated the cost of an Emergency Department attendance following self-harm at GBP362 and conservatively assumed that 1 in 100 of the episodes of self-harm that BlueIce prevented would have required hospital treatment. Modelling this to the 2,520 young people in the UK for who BlueIce has now been made available suggests a total saving to the NHS so far of at least GBP69,923. Potential future savings: The Local Government Association (2018) reported that 19,000 children attended hospital following self-harm in 2015. If BlueIce was available to all these children, taken up by half and prevented 50% of these episodes, the NHS would save GBP1,700,000 per year from reduced emergency department attendances.

Whilst the potential financial savings to the NHS are significant it is the personal benefits that are of the utmost importance. As summarised by one young person:

It’s actually really good, it has helped a lot and I haven’t self-harmed in a while. Since using the app I’ve done it once and that is over 4 weeks which is really good” (J).

5. Sources to corroborate the impact

A. ITV online news: Mental health app could help young people who self-harm (1 August 2019).

B. Guardian podcast: Treating mental health with an app. Chips with Everything podcast (18 November 2019).

https://www.theguardian.com/technology/audio/2019/nov/18/treating-mental-health-with-an-app-chips-with-everything-podcast

C. BBC Points West news story (11 October 2019).

D. NHS Health Education England. Self-harm and suicide prevention competence

Framework, page 8 (2018). https://www.ucl.ac.uk/pals/sites/pals/files/self-harm_and_suicide_prevention_competence_framework_-_service_user_and_carer_8th_oct_18.pdf

E. BlueIce on the NHS app library (accessed 18 January 2021). https://www.nhs.uk/apps-library/blueice/

F. Mental Health Positive Practice Award, Digital Health (2019).

G. Care Quality Commission inspection of Oxford Health NHS Foundation Trust (page 31) (13 December 2019). https://api.cqc.org.uk/public/v1/reports/7e4c741f-9aa4-4b27-84a8-15188291577a?20191212113009

H. The feasibility of using smartphone apps to manage self-harm and suicidal acts in adolescents admitted to an inpatient mental health ward (26 November 2020). https://doi.org/10.1177/2055207620975315

I. BlueIce on the Australian App Store (accessed 18 January 2021). https://apps.apple.com/au/app/blueice-au-deter-self-harm/id1458593605

J. Health Foundation. Innovating for Improvement: An evaluation of an innovative telephone app (BlueIce) for young people (aged 11-17) who self-harm (February 2017).

https://www.health.org.uk/sites/default/files/9.%20Oxford%20Health_BlueIce.pdf

Showing impact case studies 1 to 5 of 5

Filter by higher education institution

UK regions
Select one or more of the following higher education institutions and then click Apply selected filters when you have finished.
No higher education institutions found.
Institutions

Filter by unit of assessment

Main panels
Select one or more of the following units of assessment and then click Apply selected filters when you have finished.
No unit of assessments found.
Units of assessment

Filter by continued case study

Select one or more of the following states and then click Apply selected filters when you have finished.

Filter by summary impact type

Select one or more of the following summary impact types and then click Apply selected filters when you have finished.

Filter by impact UK location

UK Countries
Select one or more of the following UK locations and then click Apply selected filters when you have finished.
No UK locations found.
Impact UK locations

Filter by impact global location

Continents
Select one or more of the following global locations and then click Apply selected filters when you have finished.
No global locations found.
Impact global locations

Filter by underpinning research subject

Subject areas
Select one or more of the following underpinning research subjects and then click Apply selected filters when you have finished.
No subjects found.
Underpinning research subjects