'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
- Submitting institution
-
University of Newcastle upon Tyne
- Unit of assessment
- 21 - Sociology
- Output identifier
- 223811-85088-1278
- Type
- D - Journal article
- DOI
-
10.1038/ejhg.2016.30
- Title of journal
- European Journal of Human Genetics
- Article number
- -
- First page
- 1403
- Volume
- 24
- Issue
- -
- ISSN
- 1018-4813
- Open access status
- Compliant
- Month of publication
- April
- Year of publication
- 2016
- URL
-
https://doi.org/10.1038/ejhg.2016.30
- Supplementary information
-
-
- Request cross-referral to
- -
- Output has been delayed by COVID-19
- No
- COVID-19 affected output statement
- -
- Forensic science
- No
- Criminology
- No
- Interdisciplinary
- No
- Number of additional authors
-
6
- Research group(s)
-
-
- Proposed double-weighted
- No
- Reserve for an output with double weighting
- No
- Additional information
- -
- Author contribution statement
- -
- Non-English
- No
- English abstract
- -
